The Winter of My Discontent

VACTERL occasionally gives you a little break.  Though you may have an onerous lists of tasks required to keep your child happy and healthy, you get into an offbeat rhythm that mimics normal life.  You find a place of serenity and you think that you have beaten back the deadly predators. But really you are […]

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Imagine, part 7

Thud! I start this posting with a quote from Pink Floyd’s The Wall.  It is written from the perspective of a husband to his wife.  But I use it here to describe the next phase of my faith journey. Day after day, love turns grey Like the skin of a dying man. Night after night, […]

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Imagine, part 6

Crash! I preface this post with a couple of thoughts.  It is impossible for me to put into words how much I love my son.  He inspires me daily.  Let me be clear I do not in any way, shape or form blame him for what happened to me.  What follows is purely the result […]

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Dream

    Last night I dreamt that I was in a dinner with my wife’s grandparents.  It was just the three of us.  Her grandfather and I were on one side of a booth, her grandmother on the other.  There was a TV overhead.  They were playing a news story about bullying disabled children.  Jenn’s […]

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Fast Forward

I bought my own Christmas present this year, TiVo.  I am a TiVo addict.  I have been using my cable company’s DVR for the last couple of years.  It sucks.  At the beginning of the month I did a little accounting and when I realized that it would only cost me $5 a month more […]

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This week on planet Earth

This is it, surgery week.  Each of Ethan’s surgeries has come with its challenges.  This time it is that he has to fast for 4 days.  He can have liquids, but I cannot imagine that making much of a difference. Over the weekend, we took him to Hershey Park.  Today Jenn is taking him to […]

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Playing with Fire

So I am doing something you are not supposed to do.  I stopped my happy pills.   At first it was a mistake.  I fill those little pill boxes, for each day of the week.  I was 4 pills short last week.  So I put in the 3 I had and ordered a refill.  The […]

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