Imagine, part 7

Thud! I start this posting with a quote from Pink Floyd’s The Wall.  It is written from the perspective of a husband to his wife.  But I use it here to describe the next phase of my faith journey. Day after day, love turns grey Like the skin of a dying man. Night after night, […]

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Imagine, part 6

Crash! I preface this post with a couple of thoughts.  It is impossible for me to put into words how much I love my son.  He inspires me daily.  Let me be clear I do not in any way, shape or form blame him for what happened to me.  What follows is purely the result […]

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Dream

    Last night I dreamt that I was in a dinner with my wife’s grandparents.  It was just the three of us.  Her grandfather and I were on one side of a booth, her grandmother on the other.  There was a TV overhead.  They were playing a news story about bullying disabled children.  Jenn’s […]

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Memories of Thanksgivings Past

I am sitting in my darkened living room in a post turkey comma.  The sounds of family playing in the other room remind me that all is right with the world. 10 years ago was probably the most memorable Thanksgiving of my life.  Ethan had been scheduled for his second surgery in early November.  But […]

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Just in the Nick of Time

News flash…I bitch a lot about my life online.  But my blog is an outlet.  I am less cranky in real life. But on this day of Thanksgiving, I would be remiss were I to ignore the blessings I have in this life. I am grateful for the usual suspects family, friends etc…  But I […]

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Nothing Moves…This Week

This week was a roller coaster ride.  Thankfully, it is over.  Sunday the world is fresh again. “Gray Day….Everything is gray. I watch. But nothing moves today.”…Dr. Seuss Monday was one of those days that I felt wholly inadequate as a parent.  Ethan has struggled with his whole life with urinary continence.  What most children […]

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Clinical

Today is clinic day.  Once or twice a year we go to Childrens National medical center to the spina-bifida clinic to see all of Ethan’s specialists at once.  Ethan does not have spina-bifida per say, but VACTERL has a lot of the same issues.In addition to meeting with the doctors, he has a number of […]

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Entertainment?

I was watching Parenthood the other night.  I love the show, but sometimes hits a little too close to home. One of the couples has a child with Asperger’s.  They are expecting another child and the scene took place at the OBGYN’s office.  The couple was terrified that their child might be a son, increasing […]

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Flakey and not just the crust

So I was reminded today that I have been quite remiss in maintaining my blog. I need to get back in the groove. But here is what has been happening. In the middle of April, Ethan stayed home from school for two days because his stomach hurt. We wrote it off as constipation and increased […]

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