Kinda Prayin’

I must preface my remarks today with an observation.  Love has become an almost meaningless word to me.  It is so ubiquitous in our lexicon that it can refer to hamburgers, sex or a lifelong commitment.  So I am going to stop using it.  For today’s entry the word I will use to convey my […]

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Lament of a Tired Soul

I have a favorite poem.  It is the “Love Song of J. Alfred Prufrock” by  T. S. Eliot.  It is a poem of a tired soul.  The first stanza in particular resonates with me today.  Let us go then, you and I, When the evening is spread out against the sky Like a patient etherized […]

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The Winter of My Discontent

VACTERL occasionally gives you a little break.  Though you may have an onerous lists of tasks required to keep your child happy and healthy, you get into an offbeat rhythm that mimics normal life.  You find a place of serenity and you think that you have beaten back the deadly predators. But really you are […]

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Imagine, part 7

Thud! I start this posting with a quote from Pink Floyd’s The Wall.  It is written from the perspective of a husband to his wife.  But I use it here to describe the next phase of my faith journey. Day after day, love turns grey Like the skin of a dying man. Night after night, […]

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Imagine, part 6

Crash! I preface this post with a couple of thoughts.  It is impossible for me to put into words how much I love my son.  He inspires me daily.  Let me be clear I do not in any way, shape or form blame him for what happened to me.  What follows is purely the result […]

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Dream

    Last night I dreamt that I was in a dinner with my wife’s grandparents.  It was just the three of us.  Her grandfather and I were on one side of a booth, her grandmother on the other.  There was a TV overhead.  They were playing a news story about bullying disabled children.  Jenn’s […]

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Memories of Thanksgivings Past

I am sitting in my darkened living room in a post turkey comma.  The sounds of family playing in the other room remind me that all is right with the world. 10 years ago was probably the most memorable Thanksgiving of my life.  Ethan had been scheduled for his second surgery in early November.  But […]

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Just in the Nick of Time

News flash…I bitch a lot about my life online.  But my blog is an outlet.  I am less cranky in real life. But on this day of Thanksgiving, I would be remiss were I to ignore the blessings I have in this life. I am grateful for the usual suspects family, friends etc…  But I […]

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Nothing Moves…This Week

This week was a roller coaster ride.  Thankfully, it is over.  Sunday the world is fresh again. “Gray Day….Everything is gray. I watch. But nothing moves today.”…Dr. Seuss Monday was one of those days that I felt wholly inadequate as a parent.  Ethan has struggled with his whole life with urinary continence.  What most children […]

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