Put on a happy face

Jenn told me something last night that almost made me cry. While she was giving Ethan his enema, he asked if he “tried” real hard could he stop having the enema and catheterizations. Sadly, I think it is finally dawning on him that his life is not exactly like his friends. On another […]

One Step Forward, Two Steps Back

Well today was the big day. Today we started cathing. Like many unpleasant things in life, the dread of the thing was worse than the thing itself. One thing became abundantly clear as we began, we are extremely lucky. Because Ethan is older, we were able to reason/bribe him. While he does not “like” the […]