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Serenity Thwarted

We are prisoners in a broken culture.

Bliss

I had a great moment today. Ethan made his first basket during a game. The league he plays in has always been very accomodating, but he has just not been able to compete with the other kids. But today, right at the beginning of the game, there was a perfect moment…swoosh, nothing but net. I […]

Imagine, part 6

Crash! I preface this post with a couple of thoughts. It is impossible for me to put into words how much I love my son. He inspires me daily. Let me be clear I do not in any way, shape or form blame him for what happened to me. What follows is purely the result […]

I Can Do All Things (Phil four thirteen)

Go to church long enough and the same topics and scriptures are repeated. If they use the lectionary it is roughly every three years or so. At most churches it is somewhere between 3 and 5 years…except around Christmas and Easter, they are repeated annually. Rarely do you hear a good sermon about Jael driving […]

Just in the Nick of Time

News flash…I bitch a lot about my life online. But my blog is an outlet. I am less cranky in real life. But on this day of Thanksgiving, I would be remiss were I to ignore the blessings I have in this life. I am grateful for the usual suspects family, friends etc… But I […]

Center of the Universe

This is a belated entry. It actually took place a couple of weeks ago. I struggle as a parent of a child with a disability. When you parent a child with special needs, you are in somewhat uncharted territory, even more so when your child’s disability is rare. You can’t just run down to Target […]

Boo!

Halloween was really fun. I handed out candy and Jenn followed Ethan at a distance (it is no longer cool for mom and dad to tag along). I was really proud of my little man. He sorted his own candy and gave all the candy he could not eat because of food allergies to his […]

This week on planet Earth

This is it, surgery week. Each of Ethan’s surgeries has come with its challenges. This time it is that he has to fast for 4 days. He can have liquids, but I cannot imagine that making much of a difference. Over the weekend, we took him to Hershey Park. Today Jenn is taking him to […]

25 Things about Me

I could never answer the question: What do you want to be when you grow up? I had two reoccurring nightmares as a child. Jesus is tied to the railroad tracks and I am trying to untie him before the train rolls over him. Satan is in the sewer drain and drags me by […]

The Ick Factor…rated G for Gross

Halloween was great…blah blah blah. So this morning, I was doing the “procedure” with my spawn, when the catheter came out of his rear. This is a bad thing. Trust me. One word sums it up spray. Sooooo I was a little grossed out (trust me on this…I am not easily grossed out). […]