Ahhhhhhhhhhhhhh

OK, here is the monster who has been vexing me all of vacation. I finally passed the kidney stone…Saturday…3 hours before checkout. Look at this beast! It has a barb! I should not complain. I had decent pain meds. I was able to enjoy most of my vacation. Although I […]

Everybody must get stoned

Well today is the day we head out on our official vacation. Everything was running smoothly until the wee hours of Thursday morning when I got a kidney stone. This is about the fifth time I have had one. Yowza to they hurt. I was pretty much crippled all Thursday. Friday it moved to a […]

Put on a happy face

Jenn told me something last night that almost made me cry. While she was giving Ethan his enema, he asked if he “tried” real hard could he stop having the enema and catheterizations. Sadly, I think it is finally dawning on him that his life is not exactly like his friends. On another […]

One Step Forward, Two Steps Back

Well today was the big day. Today we started cathing. Like many unpleasant things in life, the dread of the thing was worse than the thing itself. One thing became abundantly clear as we began, we are extremely lucky. Because Ethan is older, we were able to reason/bribe him. While he does not “like” the […]

Blur II

I titled this entry Blur too, but for an entirely different reason. This morning a Ugandan Children’s choir visited our church. The singing and dancing were almost breathtaking. Their choreography was so rapid that literally they were a blur at times. And while they were dancing they were singing too. Only children could move and […]

Blur

I just woke up and I have not had coffee, a dangerous combination. Well I have had a couple of days to get used to the idea of cathing, and it is not the end of the world. One nice thing we discovered was that the nurse at Ethan’s new school knows how to cath. […]

Cathy

So I am in an angry troll kind of mood. Ethan had his second urodynamics test today, but I could not go because we had an emergency at work (it is 7:15pm as I write this…I am still at work…waiting for customer confirmation). The Urodynamics test is by far the most invasive test […]

Not like a horse?

Yesterday was Ethan’s clinical appointment day. Thanks to my new best friend Maggie (our GPS); we made it to DC Children’s in record time (45 minutes). After waiting for about a half hour they took us to our room. The cool thing about Children’s is that they have a flat screen TV in […]

Specialist Buffet

This week we have our Spina Bifida clinic appointment (they accept VACTERL patients too). He sees 5 specialists all at once. It is bound to be a multi-dread week. First of all, the only appointment we could get was on Jenn’s birthday, ugh. Two and three are more serious matters. They took hip x-rays […]

Me me me me me me me

I am sitting in the computer room overlooking the park, watching the kids come and go. Today was a long day. Ethan had an upper GI test (x-ray with dye in his stomach). The test was at 8:30. I expected to get out by 10:30, take Ethan to lunch, and then have some me time […]