I Can Do All Things (Phil four thirteen)

Go to church long enough and the same topics and scriptures are repeated. If they use the lectionary it is roughly every three years or so. At most churches it is somewhere between 3 and 5 years…except around Christmas and Easter, they are repeated annually. Rarely do you hear a good sermon about Jael driving […]

Nothing Moves…This Week

This week was a roller coaster ride. Thankfully, it is over. Sunday the world is fresh again. “Gray Day….Everything is gray. I watch. But nothing moves today.”…Dr. Seuss Monday was one of those days that I felt wholly inadequate as a parent. Ethan has struggled with his whole life with urinary continence. What most children […]

Clinical

Today is clinic day. Once or twice a year we go to Childrens National medical center to the spina-bifida clinic to see all of Ethan’s specialists at once. Ethan does not have spina-bifida per say, but VACTERL has a lot of the same issues.In addition to meeting with the doctors, he has a number of […]

This disease brought to you by, Snickers.

It is now officially Netflix season. Actually for my family it has been for several weeks. Every summer after the TV season ends, my wife and I find a TV show on Netflix that we never watch when it was on TV and watch every episode in order. Last summer it was “Roswell.” This summer […]

This week on planet Earth

This is it, surgery week. Each of Ethan’s surgeries has come with its challenges. This time it is that he has to fast for 4 days. He can have liquids, but I cannot imagine that making much of a difference. Over the weekend, we took him to Hershey Park. Today Jenn is taking him to […]

Maloney Baloney

This is your gut Today has been all about meetings, one right after another. I am sitting at my desk for the first time today. I need to think about something other than work. So I blog. We just got a surgery date for Ethan. He is having a Malone procedure. Unlike all of […]

A Day In the Life

Yesterday. Woof! Yesterday was a mess. It started at about 12:45am. Ethan had a bad asthma attack. He came into our room and was barking. I went to get his nebulizer, but he did not sound too bad. By the time I got back to our room, Ethan was having a full on panic […]

Wide Awake since 4am

I was sooooo looking forward to sleeping Friday night. The plan was to sleep in till 8 or 9. Ethan apparently had other plans. He contracted another UTI, probably because he is not the best and scrubbing his hands before cathing. At 4 he came into our room complaining of stomach cramps…oh no…here we go […]

Hooky

Today was supposed to be our biannual visit to the spina bifida. But as “luck” would have it, Ethan had a stomach virus and could not go. Awe…shucks, I so look forward to going into DC to get bad news. Now I could have gone into work. But I already had the day off and […]

The Ick Factor…rated G for Gross

Halloween was great…blah blah blah. So this morning, I was doing the “procedure” with my spawn, when the catheter came out of his rear. This is a bad thing. Trust me. One word sums it up spray. Sooooo I was a little grossed out (trust me on this…I am not easily grossed out). […]