Center of the Universe

This is a belated entry. It actually took place a couple of weeks ago. I struggle as a parent of a child with a disability. When you parent a child with special needs, you are in somewhat uncharted territory, even more so when your child’s disability is rare. You can’t just run down to Target […]

Clinical

Today is clinic day. Once or twice a year we go to Childrens National medical center to the spina-bifida clinic to see all of Ethan’s specialists at once. Ethan does not have spina-bifida per say, but VACTERL has a lot of the same issues.In addition to meeting with the doctors, he has a number of […]

Sunday school *3

Week 3 of Sunday school: This week is about being thankful. It is funny how I can be so cynical in adult worship, but so open to God while teaching Sunday school. In spite of all my negative mutterings on this blog, I am stunned by God’s sustaining my family. Statistically, I should be divorced […]

Grading my faithfulness…

So…Yesterday…is over for now. Ethan was scheduled for an MRI at 10:30. Since kids cannot sit still long enough for the test, they have to be given general anesthesia. So they wanted us to show up at 9:00 to do all the paperwork and pre-op stuff. We left the house a little after 7. […]